Bienvenido
Bienvenido al sitio web de Congenital Heart Alliance de Australia y Nueva Zelanda (CHAANZ).
CHAANZ es un consorcio de investigadores de enfermedades cardíacas congénitas de Australia y Nueva Zelanda. Su propósito es facilitar la investigación enfocada en enfermedades cardíacas congénitas, promover la necesidad de mayores recursos y ayudar con servicios para todas las personas con enfermedades cardíacas congénitas.
Estudio a nivel australiano sobre los resultados y la carga de las cardiopatías congénitas a lo largo de la vida
En julio de 2020, se otorgó fondos a CHAANZ de las subvenciones del Fondo de Futuro de Investigación Médica para Enfermedades Congénitas del Corazón. Este proyecto tiene como objetivo comprender las cargas y los resultados de las cardiopatías congénitas.
Aotearoa New Zealand
The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.
At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).
Nuestra investigación
 Survey ResultsThe National Congenital Heart Disease survey is now closed and the results have been published in Heart Lung Circulation. Thank you to everyone who participated in this important study. You can read more about the results here. |  ANZ Congenital Heart Disease RegistryThe National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum. |  Outcomes & Burdens for CHDIn addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. |  National CHD SurveyThe National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. |
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 ANZ Epidemiology ResearchEpidemiology research in congenital heart disease is currently underway in New Zealand and Queensland. Both studies are investigating the burden of disease in each region. More information on these studies can be found here. |  Our ResearchA call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper. |