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全國先天性心髒病調查

該調查現已結束，結果已發表在心肺循環中。有關該項目結果的更多信息，請點擊鏈接。

歡迎

歡迎訪問澳大利亞和新西蘭先天性心臟聯盟 (CHAANZ) 的網站。

CHAANZ 是一個由來自澳大利亞和新西蘭的先天性心髒病研究人員組成的聯盟。他們的目的是促進先天性心髒病的重點研究，促進對更多資源的需求，並協助為所有先天性心髒病患者提供服務。

In the News

The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.

澳大利亞範圍內對先天性心髒病在整個生命過程中的結果和負擔的研究

2020 年 7 月，先天性心髒病醫學研究未來基金撥款授予 CHAANZ。該項目旨在了解先天性心髒病的負擔和結果。

Aotearoa New Zealand

The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.

At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).

Patient Engagement Study Interviews and focus groups are underway to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. The purpose of these discussions will be to understand the participants’ impressions of the proposed care plan for transition from paediatric to adult CHD care and ongoing CHD care.	ANZ Congenital Heart Disease Registry The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.	Outcomes & Burdens for CHD In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete.	National CHD Survey The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.
Developing the ANZ CHD Registry Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.	Our Research A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

全國先天性心髒病調查

歡迎

In the News

澳大利亞範圍內對先天性心髒病在整個生命過程中的結果和負擔的研究

Aotearoa New Zealand

我們的研究

Patient Engagement Study

ANZ Congenital Heart Disease Registry

The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.

Outcomes & Burdens for CHD

In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete.

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.

Developing the ANZ CHD Registry

Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.