The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. The survey collected (self-reported) information from all people in Australia living with a congenital heart condition. The National Congenital Heart Disease Survey is the first step for gathering pivotal initial information to help provide a clearer picture of the entire congenital heart disease population in Australia and New Zealand.

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The survey collected information to provide us with a better understanding of the experiences and needs of people with congenital heart disease from childhood to adulthood, and their parents or carers, to help plan for future care and services appropriately.

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The survey is now closed and the data was analysed and insights into living with and caring for Congenital Heart Disease was published in Heart, Lung and Circulation1. You can access more information on the survey results at the link below.